LASA side studies

End-of-life care: interviews with proxies (side study)


Contact: Roeline Pasman


Interviews with close relatives/friends after death

In 2000 and 2010, the end-of-life care of LASA participants who had died in the previous 5 years (1995-1999 and 2005-2009 respectively) was ascertained via after death interviews with proxies (close relatives/friends of the deceased). Contact information for close relatives/friends and GPs of LASA participants is available in the LASA database.


Proxies were interviewed about the LASA participant’s:


Proxies were also asked about their own role in end-of-life care and treatment decisions. (references Klinkenberg and Kaspers)


Some results
Research of Pasman, Kaspers, Deeg and Onwuteaka-Philipsen (2013) shows there is a high concordance between preferred and actual treatment in older adults who prefer treatment, whereas the concordance in people who prefer no treatment is lower. Making preferences for forgoing treatment is useful, since it increases the chance of treatments being forgone in those who wish so. The study of Klinkenberg et al. (2004) employed after-death interviews with proxies and concluded that predictors positively associated with expressing a preference regarding medical care at the end of life were co-morbidity, dying from cancer and PSE, whereas being religious was negatively associated with expressing a preference. Furthermore, the majority of older persons had died without either an AD or having expressed preferences for end-of-life care.


References/ publications written from these data